Awhile back I posted about our expecting baby. At that time we didn’t know whether-or-not we would be having a boy or a girl.
Then on May 8th, 2010 at 12:03pm Andrew Scott Kaden was born weighing 5.6 lbs and measuring 18.5 inches long.
Here a picture:

Baby Andrew
Andrew was perfectly beautiful and we were so excited to have him. I personally was finally happy to meet him.
After about two days in the hospital we were expecting to be discharged and head home but an unexpected event occurred—Andrew was moved to the NICU for further observation because he wasn’t eating and some of his physical responses weren’t normal.
Shortly after (just a few days) the NICU doctor ordered some tests and had a Pediatric Cardiologist take a look at Andrew to which we discovered that our little guy had Coarctation of the Aorta a congenital condition whereby the aorta narrows in the area where the ductus arteriosus inserts. In other words, the main artery going to his lower half was stifled and his stomach, intestines, legs, etc. weren’t getting enough blood. This might have explained his lack in appetite. However, this didn’t explain his abnormal physical responses, perhaps he just wasn’t getting enough food to support his growing body and thus a lack of strength.
In addition, the doctors also ordered a ultrasound of Andrew’s brain which suggested that his mid-brain section hadn’t developed correctly and that there might be some minor issues with how his brain signals crossed over from one sphere to the other. Nonetheless, they told us that there was no concern but we would have to watch how he would develop over the coming years and that there might be some physical therapy to help him overcome any challenges.
So the decision was to transfer him to a hospital that specializing in Pediatric care for heart and pulmonary surgery.
After we had moved Andrew, we scheduled the surgery and moved forward with lots of pray and faith in God. Then as part of the surgery routine it was decided to do an MRI of Andrew’s brain to get a clearer picture. After a successful surgery, we discovered from the MRI that Andrew had Gray matter heterotopia a neurological disorder caused by clumps of grey matter being located in the wrong part of the brain. From what has been discovered about this disorder most baby’s don’t survive birth even if they have it only in a portion of their brains—Andrew had it in his entire brain!!! That means that Andrew was a miracle baby because he was not only born, but lived 22 days and went through heart surgery.
By the way, Andrew is Greek for Manly or Warrior or Courageous. Andrew was no doubt a warrior and fought for his life. In addition, in the New Testament the apostle Andrew, was the first disciple to join Jesus, and was the brother of Simon Peter. In a weird way it’s interesting to think that in our family Andrew was the first to go home to be with Jesus.

Andrew the Warrior
Anyway, when we learned of his brain condition a lot of answers were explained including that Andrew would never live a normal life and could have never lived without artificial assistance. The best case scenario would have been 10–15 years of life with maybe a smile or grunt from him with a lot of tubes and mechanical devices. Nonetheless it was obvious that Andrew’s body was shutting down and was unable to sustain—he was building up fluid in his lungs, his heart was erratic, and he was having multiple seizures (in one case when I was holding him, he had a five minute seizure) amongst the many other abnormal physical examples.
Because of his rapid decline we quickly moved him to a hospice where we were able to spend that last few hours with him. It was an awesome time because it was the first time we got to dress him up in his clothes, give him a car ride, hold him without tubes and wires, and just love on him. The doctors told us that babies usually take one to two weeks to pass but Andrew passed in under 48 hours. During those precious hours we were able to have family photos taken, have friends, family, and acquaintances meet him and hold him.
In the end, we know that God was with us, strengthened us, and used Andrew, his short life, and us as part of his ultimate plan (even if it’s hundreds of years from now before we see the “true” impact; 1 Thessalonians 4-10).
Andrew Scott Kaden Moore was his name and is was selected by us as his parents. The first letter of each name is part of an acronym that sounds like “ASK Him” (ASK-M); Deuteronomy 4:29. Even though we truly don’t know why we lost Andrew, we have faith in the reason why.
We love you Andrew.


